Not Bad Thing: Now We Wait

Wednesday, January 4, 2012

Now We Wait

Lisbeth in a staring seizure...

Dad waiting for the window of opportunity to administer 1 mg Ativan...

Kneeling at the Altar of Patience...

We finally did get it into her, so now she will rest and hopefully clear up...

Lisbeth's Milkweed Shrine table...

Garry and I saw Lisbeth's psychiatrist last night, then brought the orders over to Lisbeth's staff at her house. While there, we helped to give Lisbeth an Ativan for staring seizures. We are stopping the Benadryl, and starting a slow decrease of the Risperdol. We will wait and see what happens. If her rage attacks recur, we spoke about the possibility of trying another anti-psychotic once Lisbeth is off Risperdol, one that does not cause EPS: Seroquel.

Sigh.

To quote Lis, Hard to know...

1 comment:

KaHollyJanuary 4, 2012 at 7:04 AM
I applaud your patience and perserverance (sp?). Lisbeth is a very brave girl and you are very brave parents. I hope 2012 is a better year and the change in meds works well.
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Lisbeth's Blue Bird Angels Mandala

My daughter Lisbeth suffered a traumatic brain injury when she contracted a viral illness in 1988 at the age of six, and she continues to be challenged by multiple difficulties including uncontrolled seizures, behavioral disturbances, learning disabilities and developmental delay. Despite these challenges, Lisbeth's mighty spirit and creativity are remarkably intact. She creates extraordinarily beautiful cut paper snowflakes - hundreds of them (it is ironic that a cluster of seizures is called a "flurry...") and like real snowflakes, each one is unique. Lisbeth sometimes refers to her creations as "brains," which is poignant, for in the making of each snowflake/mandala, it is as if she is recreating her brain. Lisbeth sees figures, animals, and objects in the cutout shapes of each one of her designs, and says that these are what the brain is thinking!