Sunday, January 9, 2011


Lisbeth had dinner with us last night at her favorite restaurant, China Rose. Lis has gone through so many changes lately, the most visible being pronounced weight loss. Medications had caused weight gain and bloating the past few years, not a good side effect. When Lisbeth was very young, she was emaciated. So we'd lost track of the real Lis as far as size. We think that now she is where she is supposed to be, around a size 6. Lisbeth had a loss of appetite while on Keppra, so that, combined with taking her off Vimpat last spring (one of the drugs that caused weight gain) resulted in dramatic weight loss. Now we want to be certain that she doesn't lose too much weight! She is eating better since off the Keppra, so we have fingers crossed that she's hit a plateau.
Lisbeth's psychological state is improving as well. Her helpers report that she's like a new person off Keppra - more positive, relaxed, and energetic, even though she's having seizures again. She told one of her helpers that the old voice in her head that was saying "getting dead" is going away. She said, "It's going in the trash. Now there is the new sweet voice." (Lisbeth continues to blow us away with her insights...)

Things can still change on a dime - last night Lisbeth was fine for the first half of dinner then suddenly reared up out of her chair panic stricken - saying she needed to go home with us right that minute. We tried to gently re-direct her, but she remained agitated, and started to feel like she was going to have a seizure. We used her magnet, and finally had to administer her PRN lorazepam. We went back to her house, and it took a couple of hours to calm her down and settle her in for the night. I called her house this morning, and her helper reported that she is clear again and in good spirits. The up and down and back and forth of it. This is how it is. It will never be perfect, but all things considered, for now, it's a whole lot better.


  1. I just followed your link to the magnet post. How did I miss that? January wasn't a very good month for me, I remember. I'm so pleased to learn that Lisbeth is having some successes off that Keppra. She's a beautiful girl! I particularly enjoy it when you share her thoughts. They are pure and innocent and so deep!!

  2. Hi Martha! It's Amy (Lorna's youngest daughter) I've always read your blog, and I don't know why I never subscribed to it.
    I've noticed a couple of times that you mentioned that Lisbeth has started feeling like a seizure coming on when you have been out to dinner. Could this possibly be triggered by the fluorescent lights in the restaurant?
    I'm sure you've already considered this possibility, but I've noticed you wrote about it twice when you went to the chinese restaurant, and I can tell from the photos that it has fluorescent lighting.
    Anyway...I'm rambling, as usual!
    I hope you're all staying warm up there and that Lisbeth's health continues on the upswing! xoxo

  3. How beautiful Lisbeth looks in that top picture. And how beautiful to hear that that horrible old voice is going in the trash. Long may it stay there.

  4. Lisbeth sure does look different!--good to see her emerge from underneath the weight gain and the bloating.

  5. Hi Karen!

    Yes, I love to share Lisbeth's take on things! The right way of it! :^D

  6. Hi Amy!

    Good point about the lights! Over the years we've ruled out alot of external factors - Lis seems to have an internal seizure cycle that will happen no matter what. That said, there are a few externals that do seem to trigger an event - being in the shower is one - she's had alot of seizures there. Temp change perhaps. Lis gets anxious out in public in alot of places - because she has a TBI her filter system is faulty, and layers of stimulous can be overwhelming. She sometimes wears ear protectors and dark glasses to help!

  7. Hi Caim & Coracle!

    Yes, may the creepy old voice stay in the rubbish!

  8. Hi Sue!

    I know, right? She looks like her old self again! Yay.