Lisbeth slept over this past weekend. I will have to do a separate post about The Sleepover. I'm certain that it will require more than one post, but for now, let's just talk a bit about last Saturday night. Lis and I designed a special ornament together based on one of her drawings of her cat, Little Milkweed. As I've said before, Milkweed is Lisbeth's world. They have a very tight bond (in fact, they look so much alike, I'm convinced that if Lisbeth Miller was a cat, she would look just like Little Milkweed...). Lisbeth needs constant attention, so while Garry was busy fixing our dinner, I suggested that we make a little angel ornament out of snow white felt. She approved. Lis picked out just the right shades of pink and blue for Milkweed's nose and eyes, and supervised the process from a comfy chair.
We made this ornament to add to a shrine for Milkweed that we are building on a wall in Lisbeth's living room. Lis's house manager, Holly Spence, and IA's resident psychologist, JC Edelberg and I have been meeting to brainstorm about ways to help reduce Lisbeth's anxiety. One idea we have is to teach Lisbeth some very simple deep breathing and muscle relaxation, and to help her focus on something soothing while doing these exercises. Lisbeth has difficulty with abstract thinking, and to attempt to teach her specific religious doctrine - the sort of thing that can bring comfort to some individuals - simply does not work for her. Lisbeth knows what she knows. She knows she loves Milkweed, and Milkweed is there for her unconditionally. So thoughts of Milkweed are always pleasing for Lisbeth. We often talk to her about Milkweed when she is perseverating and needs redirection. Milkweed brings her joy.
So we are building this meditation corner for Lisbeth, with All the Things of Milkweed. Our hope is that it can be a place where Lis can sit daily and look at all the little things that bring about feelings of peace and joy. Lisbeth loves to find matching things (one of her neuro-psych evaluations catagorized Lisbeth as having an associative brain, something that I believe all artists possess) and she will love finding flowers and trinkets that are Milkweed's colors and adding them to her little shrine. Lisbeth's therapist, Stepanie Cimmet, has begun teaching Lisbeth the breathing and relaxation exercises, and has agreed to be taped doing this, so that Lisbeth's staff can learn the technique and do the exercises daily with Lisbeth. We hope that Lisbeth will be able to do these exercises in her meditation corner, and that by practicing daily, she will make gains in reducing her profound anxiety.
My daughter Lisbeth suffered a traumatic brain injury when she contracted a viral illness in 1988 at the age of six, and she continues to be challenged by multiple difficulties including uncontrolled seizures, behavioral disturbances, learning disabilities and developmental delay. Despite these challenges, Lisbeth's mighty spirit and creativity are remarkably intact. She creates extraordinarily beautiful cut paper snowflakes - hundreds of them (it is ironic that a cluster of seizures is called a "flurry...") and like real snowflakes, each one is unique. Lisbeth sometimes refers to her creations as "brains," which is poignant, for in the making of each snowflake/mandala, it is as if she is recreating her brain. Lisbeth sees figures, animals, and objects in the cutout shapes of each one of her designs, and says that these are what the brain is thinking!
Lisbeth lives in her own home with her cat, Little Milkweed.
Click their picture to learn about Independence Association, the amazing agency that makes this possible!
The Good Doctor
Dr. Gregory Holmes, neurologist, and Lisbeth. Click on this picture to learn more about the neurology program at Dartmouth-Hitchcock Medical Center.
Vagus Nerve Stimulator
Click this pic to learn more.
Spindleworks
Click this pic and visit the incredible Spindleworks!
The Normal One: Life with a Difficult or Damaged Sibling
Click this pic of Lis and Sister Kait to read about Dr. Jean Safer's book!
Some Lis-ism's
Not Bad Thing (not necessarily bad), You Do Know (ya know?), The Right Way of It (to do things correctly), The Wrong Way of It (to do things incorrectly), True (what is real and right -affirmative), Silly Way of It (silly), Funny Way of It (funny), Mmmmm Hmmmm, Mmmmm Hmmmm, Mmmmm Hmmmm (yes), All the Ways of Lisbeth Miller (understanding Lisbeth's condition and caring for her appropriately).
More Lis-ism's
It's left in my brain (I remember), It's not left in my brain (I can't remember), Hard to know (Hard telling not knowing, I don't know), Guys couldn't believe it! (incredible!), All the Year and Month (all the time), Doing the Funny Joke (kidding around), THIS way (inserted in sentences repeatedly, emphasis on THIS. not sure I can translate this. It's in the realm perhaps of, Do you follow Me?)
I am an artist, an art teacher, a mother of five children, and a grandmother of four, and I live with my husband and our two cats in the woods of Woolwich, Maine. I teach drawing classes through the Continuing Studies Department at Maine College of Art in Portland, and now privately in my new (!) studio @ 72 Front Street, Bath. My blog 'Martha Miller' shares my art, my process, and my inspirations, and my blog 'Not Bad Thing' showcases my daughter Lisbeth's artwork and process. It is also where I share my experience as a mother of an adult child with special needs. You can see more of my artwork on my website @ www.marthamiller.com